Hi folks I missed both SED & CDS yesterday due to my daughter being ill. As I had posted earlier in the blog (Kali) has had a fever since Friday. I took her to the Dr. yesterday and she is now on med's and is not allowed to go back to school for a week unless she goes two consecutive days without a fever. Kali has always been a pretty sickly kid, which always causes great concern when she gets a fever- when she was 6 yrs old Kali got sick with a high fever and we (including the Dr.) just assumed that it was viral; she was prescribed an antibiotic and sent home. After 2 more trips to the Dr. and two more antibiotics prescribed in a week- Kali was finally admitted to the hospital. She had huge marble size lesions in her mouth, on her tongue, in her ears, on her eyes, and on her back. The ones on her back were the size of small pancakes that looked like burn blisters. (she still has scars on her back from those). After 11 days in the hospital the Dr. finally found out what was wrong with Kali- she was Diagnosed with Stevens-Johnson Syndrome- which is a rare serious disorder where the skin and mucous membranes react severely to a medication or infection. Basically this disease causes the top layers of skin to die and shed. It was horrific and my daughter was in such pain that even Morphine didn't help. It was by far the worst thing I have ever gone through as a mother.
The doctors finally figured out that the onset of Stevens Johnson Syndrome was by an allergic reaction to antibiotics. She is allergic to Penicillin, Keflex, Duricef, Biaxin, and all sulfur drugs. (Which her original Dr. had failed to document some of the med's he had prescribed her which sent me on a wild goose chase to the pharmacy begging for printouts of all she had taken in the past 6 months so I could take them to the hospital staff) Needless to say he is no longer her physician and her medical chart is now neon green with all kinds of neon stickers on it as a red flag to all the Dr.'s at Madison Pediatrics to know she is high risk. Fortunately, Kali can take Azythromycin but her Dr. is always hesitant about giving her any med's in fear that she will have another reaction. So for all you Mommy's in class - make sure your Dr's document everything in your child's chart- don't do like me and assume they are doing their job.
Kali is now 13 and she has had only 3 other outbreaks of SJS since then and I pray that she never has to deal with it again. For those of you that pray please say a little prayer for Kali that she doesn't get any worse.
ALSO...could someone fill me in on what I missed in class. Thanks. :)
Tuesday, October 27, 2009
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Jeannie, I will certainly be praying for Kali and for you. One thing I have right now at times is time to sit and pray. You will both be on my mind and in my heart and prayers.
ReplyDeleteWe went through the Power Point that is posted on the web. If you compare it to what is in the book and read carefully the parts of the book that correspond with it you will have an understanding of the important aspects of the chapter. We will review and connect to the topics on Wednesday as they are critical for children with autism as well.
ReplyDeleteJeannie-
ReplyDeleteI am so sorry to hear about your daughter! I hope she gets better soon! I just wanted to let you know you didn't miss much in CDS 275. We went over some Power Point slides about CAPD that he would e-mail to us. It was about 4 or 5 slides and he said the information would be on the test. He then went over the study guide and answered any questions we had. If you have any questions about the study guide let me know, I will be more than happy to help!
Mrs. White,
ReplyDeleteThank you for the thoughts and prayers- I do hope that Virgil is doing better than what he was doing over the weekend. There is nothing worse than watching the ones we love suffer. Hang in there- God hears and knows our every need.
Sandy,
I've basically finished the study guide - I just need to know if we are supposed to know all the terms for chapters 3,4,9, and 11. I know they weren't listed on the Study Guide but I want to make sure that I've covered everything. Also are we supposed to be able to label any diagrams for the exam?
Thanks in advance. :)
Jeannie-
ReplyDeleteHe told us in class that as long as we knew what was on the study guide we would be fine. So i think the test is only over chps 9 & 11 and then the power point slides that he is supposed to put on blackboard/e-mail to us. He also told us that we should be able to label an Audiogram. Hope that helps! If anyone in CDS knows any else let me know!